Monday, July 20, 2009

Manic Mondays

Here we are....the second week of school holidays. So far no one has called the cops on me...at least as far as I know, there may be a backlog. So I'm calling it good. Just took Tessi to school and Teddy and Connor are fighting over...as God as my witness, I have no idea. I just here yelling and I'm tuning it out. I'm going to wait until actually bleeding starts before I do anything. I'm not even 1/2 through my 2nd cup of tea for God's sake....no jury would convict.

Today we are meeting with Connor's pediatrician. In OZ you only see the pediatrician for serious things...everything else is done by a gp. Today I want to talk to the dr about Connor and her anxiety issues. I'm trying to get her looked at by Children's Westmeade Development Center, as suggested by her Kindy teacher. I would swear on my limited knowledge of Autism that Connor has Asperger's. This should be impossible since she started with a profound speech delay. But everything about her screams Asperger's. Inappropriate emotions, savant-like memory of the obscure and inane and zero memory of what the rest of us perceive as important.

I'm hoping to find some more insight into this insane affliction. 4 years of living in the Spectrum really hasn't taught me all I need to know. In fact, not even close. One of my favorite pearls of wisdom about all of this, "Something may be a definate sign of Autism; unless it isn't" I love that one. Meaning that lining up toys all in a row can be a massive red flag for Autism; unless of course your child just likes to line things up...then it isn't a sign. No wonder so many of us parents go barking mad.

So we'll see what Dr. Cohen says today. If anything. He may just tell me to unclench and relax. Oh so helpful. Another pearl of wisdom people have for parents of Autistics. Please do me one favor, those of you who do NOT have a loved one on the Spectrum. If only just today, if you meet someone who's child is Autistic, do NOT tell them to relax, that everything will be alright. As helpful as you think you are being; you really are being the opposite. We don't get to relax. We have to on guard all the time, watchful for new signs and symptoms to start therapy for and have to constantly explain our child's odd behavior and try to plan for the future. You see, for your children at ages 5 and 4, they still have boundless options. Mine do not. Mine already have limits and the more I do now...at a young age...the more of a chance they have in the future to exceed those limits.

Well, that turned out to be more of a rant than I was planning. Must be the cold medicine and the fighting over...sigh...still don't know what that was all about. If I'm honest though, I really don't want to know.

1 comment:

Amy Rall said...

cecelia, what did you end up finding out? My 7 year old had very manic episodes, speech delay, all kinds of issues and it ended up being severe AD/HD which is TOTALLY different in girls than in boys. I can send you a link to a book that was an aha moment for me. Hope you got some answers. thanks for the link to the blog.